Waiting to hear from the doctor today to see what our next steps are to ensure that Angelina remains NED and on the road to remission. I just want to take a moment to clarify- Angelina isn’t “cured”. It simply means that her most recent scan shows no evidence of cancer (which is still GREAT NEWS). It may still be there- just too small to detect. We will continue with some type of treatment aimed to completely wipe it out, and keep us heading down this bright sunny path. We know you’re with us every step- and it makes all the difference.


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Update- Angelina is in today for a PET scan. This scan should be able to tell is what the spots on her spine and ribs are that we are unable to biopsy. Hoping that they are benign disease that has yet to calcify. That would be the best news ever leading into her Wish. It would certainly be part of our wish come true.

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Angelina gets the American dream- she’s officially a homeowner. Later today I intend to send her a tax bill, and am estimate to install a boiler just to make it more authentic


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When your child has cancer, you’re thankful for the good days, but can’t help but always feel that they are tainted by the fear of relapse. Grateful that in just over two weeks she’ll get to do her Make-A-Wish Foundation trip.


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This has been a long journey and I am going to share my biggest regret – when Angelina was born, I was offered a tremendous discount by a ViaCord rep to save her cord blood. At the time I believe it was a waste of money- until my oncologist asked if we had saved ours as Angelina now needed it for a stem cell transplant. We were also told that because of our ethnic background, we would never find a donor in the public bank, as donated blood from mixed families is usually thrown away. And surprise, public banks are not really “public” they cost over $20k just to apply. Angelina’s stem cell harvest is a process I still have nightmares over- her screaming with shots, her fussing with the port in her groin for harvest, and while cord blood banking was $2,000 at the time, her stem cell harvest cost almost $300,000. (That’s 5 zeros). Tonight if you live near Hillsdale, New Jersey, and ARE OR KNOW SOMEONE WHO IS EXPECTING A BABY, there is a FREE info dinner at 6:30 at Seasons Catering and Special Events. There is no obligation to bank, no “pay now” pressure. I just ask that if you can make it, please come and learn and make a more informed decision than I did. I always thought “those things happen to “other people”. I’m proof that those people can be your daughter, your sister, your niece, your friend, your colleague, your (fill in the blank). So- hoping to see you tonight.


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Another week of treatment down! A little puffy and bumpy but overall ok! We are on the final countdown to her Make-A-Wish America! Got our flight info yesterday! Going to LA to see Nerdy Nummies, visit FIT4MOM, and see all our California friends and family! Can’t wait!


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It’s been a long week of treatment but I got one day to go! Look what I made today at Memorial Sloan-Kettering Cancer Center!


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Check out the cool hand band I made! I’ve got tons to make this week- I’m going in for treatment. Angelina is also have a PET scan next week, so we can figure out if the two spots (which finally shrunk) are active cancer or something else. Praying for the words that have eluded us for the past 18 months- NED (no evident disease). Maybe the PET scan can give us that. Then the countdown to remission (5 years without disease) can finally begin! Please keep our friend Prestun Seibel journey kickin Neuroblastoma Butt in your brains. He relapsed in his brain a few days ago and is undergoing surgery while we are in for treatment at Memorial Sloan-Kettering Cancer Center. He’s Angelina’s age. No child should go through this! Stupid Cancer #cancersucks


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Check out the cool hand band I made! I’ve got tons to make this week- I’m going in for treatment. Angelina is also have a PET scan next week, so we can figure out if the two spots (which finally shrunk) are active cancer or something else. Praying for the words that have eluded us for the past 18 months- NED (no evident disease). Maybe the PET scan can give us that. Then the countdown to remission (5 years without disease) can finally begin! Please keep our friend Prestun Seibel journey kickin Neuroblastoma Butt in your brains. He relapsed in his brain a few days ago and is undergoing surgery while we are in for treatment at Memorial Sloan-Kettering Cancer Center. He’s Angelina’s age. No child should go through this! Stupid Cancer #cancersucks


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Today was a huge victory- Angelina’s first day of kindergarten! Last year she wasn’t able to go to her first stay of school, here we are a year later and she’s in school. Please God- let this upswing continue. She deserves it.


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